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#1 |
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Former Guest
Join Date: May 2004
Location: Valdez, Alaska
Posts: 219
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Many military and non military could have this often overlooked cause of fatigue:
These are pesticides gulf war troops were exposed to (& many in the general population, too) and they cause endocrine disruption, central nervous system damage, & the 'symptoms' ... but first and foremost, red blood cells die off prematurely - this is the cause of fatigue for many: 2-butoxyethanol and diethylene glycol monobutyl ether over-exposures. Many can pinpoint the exposure! I suggest that your greatest exposure was at the time you had the extreme 'flu-like' symptoms. Did your eyes burn and hurt like hot pokers were in them? Did your urine turn dark to black in color? Did you have a horrible fatigue set in that never left and all the other things start at about that time, too? This can still be tested for, because if you have been harmed by 2-butoxyethanol you will have the CFS, CFIDS, the assorted Gulf War Syndrome symptoms, and the blood damages underlies all other damage. Get the 'retic' ratio (ratio of mature to immature red blood cells) Ask for comment on the size and shape of the red blood cells; also get the Complete Blood Counts with differential and while you're at it, the Kidney and liver function. (Kidneys can be affected by metabolic imbalance) Did you know kidneys produce hormones that help make red blood cells and strong bones? Sometimes when kidney stones start up, and when the 'textbook' case isn't there, check for hyperparathyroidism ... for a metabolic disorder. This makes sense because the endocrine system is disrupted ... maybe reflected in high/low blood pressure ... or high/low blood sugar, etc.? Ask for the white blood count to be done by microscope, as you should have too many immature red blood cells which will cause an elevated white blood count when only done by the computer. Have you heard them say that Gulf War Vets are no more harmed than the general population? Well that could be, because this chemical has been around for more than 60 years and hurting many people from then to NOW. |
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#2 |
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*TFF Admin Staff Chief Counselor*
Join Date: Mar 2003
Location: At SouthernMoss' side forever!
Posts: 13,376
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Good information, MM.
More attention does need to be paid to these symptoms.
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#3 |
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Former Guest
Join Date: May 2004
Location: Valdez, Alaska
Posts: 219
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In fact, I believe that most people can pinpoint the time when the overexposure happened.
If we work together it will come against the harm of this chemical like nothing ever before. It will also be the easiest study (assuming CDC will do such). All that is necessary is for a doctor who has seen you somewhere in your state ... ordering the blood tests at your local laboratory. Examples of second hand solvent exposure with letter to doctor at page bottom ... How to test for too many immature red blood cell form of fatigue Last edited by Mother Margaret; 05-08-2004 at 02:37 PM. |
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#4 |
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Former Guest
Join Date: May 2004
Location: Valdez, Alaska
Posts: 219
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These should be the identifying marker of whether someone has had too much exposure to 2-butoxyethanol: blood in urine (from a lot in the beginning) to just a trace years later ... but always blood in one's urine (as a result of autoimmune hemolytic anemia ongoing)
AND Red blood cells will become more and more immature. Will there even be any that are mature (live 120 days) I wish to be involved in a study of the Exxon Valdez oil spill cleanup workers with known exposure - and the 'gulf war syndrome' vets (if they all any any health ailment in common, that will be significant) - and the general public who is harmed by this chemical in multiple exposures, too Please share your info if you have either positive or negative results as to the above... and you have CFS, CFIDS or 'gulf war syndrome' Public Service Announcement Horrible Fatigue? Cause Unknown? If you have blood in urine & too many immature red blood cells, consider 2-butoxyethanol poisoning. Abnormal blood sugar, blood pressure, glandular, liver, kidney & nervous system function possible, too. Check for autoimmune hemolytic anemia. www.valdezlink.com/why_fatigue.htm Pending study on Chronic Fatigue. Please share your findings with mother_margaret@yahoo.com Margaret D. Hursh PO Box 233, Valdez, AK 99686 1-888-853-5333 Can you ask someone to post this PUBLIC SERVICE ANNOUNCEMENT? ... and if you are someone with CFS, CFIDS, 'gulf war syndrome' vet or are an Exxon Valdez oil spill cleanup worker ... could you share your results and do this brief survey (overview of symptoms)? Remember a time when your eyes were burning and hurting? Last edited by Mother Margaret; 09-07-2004 at 09:24 AM. |
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#5 |
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Former Guest
Join Date: May 2004
Location: Valdez, Alaska
Posts: 219
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First of all, what does it feel like? You feel TIRED!
"Chronic fatigue syndrome (CFS) is a condition that starts with flu-like symptoms and lasts for 6 months or more. All other possible causes of fatigue are eliminated before this diagnosis is made. Little relieves CFS fatigue, including rest." Exposure to 2-butoxyethanol could be the cause of this fatigue. In the literature it is reported to cause acute hemolytic anemia (I suspect autoimmune) It can affect anyone at any age: military, such as the 'gulf war syndrome' vets and housewives, too Here is an example of what an acute exposure could look like: www.valdezlink.com/gwv6-14.htm#9 (& besides this type of fatigue, there is Central Nervous System damage with resultant depression and severe grouchiness AND more) CDC's statement regarding CFS and a possible autoimmune connection and this is what they had to say: "One thing is certain at this juncture: there are no immune disorders in CFS patients on the scale traditionally associated with disease. Some investigators have observed anti-self antibodies and immune complexes in many CFS patients, both of which are hallmarks of autoimmune disease. However, no associated tissue damage typical of autoimmune disease has been described in patients with CFS." www.cdc.gov/ncidod/diseases/cfs/info.htm I found the Mayo Clinic's list of possible causes to be interesting as it relates to the AA theory. They state: "The cause of CFS may be an inflammation of the pathways of the nervous system as a response to an autoimmune process, but with nothing measurable in the blood like in other autoimmune diseases such as rheumatoid arthritis or lupus." http://www.mayoclinic.com/invoke.cfm...308&dsection=3 The American Autoimmune Related Diseases Association (AARDA) has CFIDS listed along with more than 60 other AA diseases. They state: "Chronic fatigue immune dysfunction syndrome (CFIDS) is a chronic inflammatory illness of undetermined origin. It is suspected but not proved to have an autoimmune component, as many of those diagnosed with CFIDS have circulating antinuclear autoantibodies." http://www.aarda.org/patient_information.php they continue, "Another thought that I have is the fact that endometriosis is prevalent among CFIDS patients and is by all means a progressive disease. While there are still no clear answers as to the cause of endometriosis, current research is leaning towards a possible autoimmune response there too. Endometriosis.org has this to say about that theory:" Immune System Dysfunctions "The most recent studies seem to be considering evidence that might classify endometriosis as part of a larger immunological disorder. (J.A. Hill) Women with endometriosis seem to suffer disproportionately to a number of other immune system disorders such as lupus, thyroid-related problems, allergies, and candida albicans. Women with endometriosis have also been found to carry cells with reduced ability to fight off "bad" cells (Dmowski, M.P. et al.), and high levels of autoantibodies that attack their own healthy cells (El-Roiey, et al.)." http://www.endometriosis.org/html/causes.html One thing that every one agrees on is that our bodies are in a continual state of response to SOMETHING. If that "something" turns out to be an actual virus that has yet to be discovered then perhaps it won't turn out to be an autoimmune disease. If that something is really nothing and our bodies are engaging in "friendly fire", then it seems that there would be a case for that. A 3rd possibility is that CFIDS starts out as a viral assault but an autoimmune condition results. That is one theory behind MS and other AA diseases My thoughts, YES, if from this chemical exposure: http://www.ragereport.com/phpbb/nfph...?p=24490#24490 Some would say, "fibro 14 years ago. I'm also hypothyroid and have osteoarthritis" This is part of the pattern of a chemical I have studied ... 2-butoxyethanol (also known as ethylene glycol monobutyl ether). 15 years ago was the Exxon Valdez oil spill. By any chance were you one of the workers? Many were exposed to too much of this chemical at that time. www.valdezlink.com/1989photos.htm Help your doctor pinpoint whether or not this chemical is the cause of your FM & thyroid, and dizziness: http://www.ragereport.com/phpbb/nfph...?p=24490#24490 I suspect the fainting could be from not enough mature red blood cells or not enough volume of blood. There will be trace blood in urine for years after this fatigue hits... (from immune system prematurely destroying your red blood cells); and the red blood cells will be immature. www.valdezlink.com/why_fatigue.htm I suspect many 'heart attacks' are from the affects of this chemical on the blood, too. Some comment that they have thick, dark blood. With CFS, CFIDS, 'gulf war syndrome' www.valdezlink.com/cfid_share.htm The fatigue doesn't show up as expected in the regular blood work, thus the doctors don't look further, and that's why they say they don't know. Do you have these signs of this anemia? www.valdezlink.com/generic.htm#8 Chills Fatigue Pale color Shortness of breath Rapid heart rate Yellow skin color (jaundice) Dark urine Enlarged spleen Now this is the dictionary definition of what the signs of hemolytic anemia would be; and I suspect they are giving an example of an extreme, very obvious case; however, for most people it is all shades of gray ... and these symptoms come and go in a mild form. I share them here for you & your doctor to consider whether or not they might be a clue to hemolytic anemia's 'hiding out' & more things to go over here: www.valdezlink.com/health_survey_for_doctor.htm www.valdezlink.com/check_blood.htm#retic Keep track of this number AND the Best Research I Found www.valdezlink.com/2-bmsds03.htm & there is extra info that doctors can pull up for free ... with more explanation ... And more info http://www.ragereport.com/phpbb/nfph...pic.php?t=2539 including a 1975 example of acute acquired autoimmune hemolytic anemia Some patients won't show any evidence of this in the blood counts, the hemoglobin, hematocrit; but the red blood cells should decline over time. And for one of the workers of the Exxon Valdez oil spill cleanup (where I learned about this chemical in the first place) who has noticeably low red blood cell counts and low white blood cell counts and low hemoglobin, this is in a very serious state. Yet, to date, he has not been diagnosed with this condition. I wonder whether the bone marrow is having difficulty making enough red blood cells? I wonder whether the immune system is 'tired' of making those white blood cells after 15 years of 'overworking?' In the beginning, however, his red blood cells would have been ragged, and beat up. It seems one's immune system is prematurely destroying your own red blood cells. I wonder whether 15 years later, there is still trace blood in urine www.valdezlink.com/psa.htm or is it too minute to calibrate? What are the size and shape of the red blood cells ... what are the cell membranes like (loosing elasticity? so fragility of red blood cells?) www.valdezlink.com/rbc_size_shape.htm It is very important to know whether or not your red blood cells are predominately premature. Because if they are, other medical tests don't read right: like white blood cell counts will read too high; liver counts will read too high. Hmm, maybe the hemoglobin is reading higher than it is? I am not a medical person, but I have studied this chemical and talked to many people with known and suspected exposure to it. I have been very frustrated to know that this hemolytic anemia has to be there from day one ... and that since it doesn't leave, it still has to be there ... but why isn't it being found? Well, it fools the tests, that's what I think. Why did I study this chemical? http://www.seattlepress.com/features....php?p=134#134 I personally believe our nation has a pandemic, unrecognized health crisis on their hands |
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