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Well folks thought post in case anyone cares. OK, I heard that!
Went have it done and to my surprise they were not able to do them. Here I was worried about hardware in me.
Tech gave name for it but said I was curved and twisted to much.
Said head had be pretty close to pad/table and mine was to far up, even with things under my leg and rear not able get it there. Same with upper back.
Said call ordering doc and let them know. Wonder what they do now?
 

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Well folks thought post in case anyone cares. OK, I heard that!
Went have it done and to my surprise they were not able to do them. Here I was worried about hardware in me.
Tech gave name for it but said I was curved and twisted to much.
Said head had be pretty close to pad/table and mine was to far up, even with things under my leg and rear not able get it there. Same with upper back.
Said call ordering doc and let them know. Wonder what they do now?
Can you give us a bit more background on what is going on and why the doc wanted an MRI in the first place. Could simply be arthritis in the cervical vertebrae. What sort of symptoms are you having. I apologize if you already posted somewhere else on this and I didn't catch it.
 

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Thank you. Looks like I posted a couple of replies on that thread already.

At this point, follow up with your doc and specialist to see what further studies might help with this. Sorry to hear that you couldn't get the MRI completed. They can add a lot of good information when trying figure out some of these issues.

Sounds as if you have had quite a time at it.

Prayers.
 

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Discussion Starter #5
"Thank ya'll"
Alaska444 Yes sir, started out when fell last Nov, got twitch in face and lump on skull.
Primary referred me to Neurologist but with virus got kicked down round.
When saw them he didn't seem worried about twitch just lump and said I was losing muscle mass. He bought up some demyelinating polyneuropathy stuff. I read about it which seems it's real rare. So figure I'm just getting old.
He also sent me to another Neurologist which done bunch blood work, ran tuning fork and then knocked around on me with reflex hammer. That one suppose do EMG on next visit.
gdmoody, "Thank you" appreciate you finding and putting link up. Sorry, Guess I should just added to that thread but figured it would we way long.
 

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I only saw a couple of cases of demyelinating polyneuropathy in my years of practice, which has been nearly 15 years since I last worked.

https://rarediseases.org/rare-diseases/chronic-inflammatory-demyelinating-polyneuropathy/

CIDP is mainly a clinical diagnosis and is related to Guillain Barre Syndrome which I also saw I believe 3 cases in about 20 years including Med School. My impression was that treatment was often started based on clinical symptoms and physical exam findings with EMG/NCS and other tests such as spinal fluid analysis and confirmation is with nerve biopsy (Usually the Sural nerve in the leg which is a superficial, sensory nerve)

https://en.wikipedia.org/wiki/Sural_nerve

https://academic.oup.com/brain/article/124/12/2427/455127

But if they really suspect this condition, I would expect more immediate treatment and diagnostic options implemented without delay. If I read your posts correctly, it appears you have not had progression of symptoms since last November that would lead me to think that demyelinating Polyneuropathy is not what is causing these symptoms.

Praying that you get answers more rapidly than you have and get some relief from this and your other issues you have described. God bless,
 

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Sorry things are not going smoothly. Seems as if there is always a bump in the road.

Praying that you get answers more rapidly than you have and get some relief from this and your other issues you have described. God bless,
Amen.
 

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Have they said anything about a open MRI ? I now of a few folks from church who are a bit big that needed MRIs done and used them . There not like a tube it's just a table and the ring scanner thing is big . Sorry for my big technical words ! If you need name of place that did it just let me know BlueDragon and will find out . If remember it was in Edmond . Saying prayers for you .
 

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Discussion Starter #9
Have they said anything about a open MRI ? I now of a few folks from church who are a bit big that needed MRIs done and used them . There not like a tube it's just a table and the ring scanner thing is big . Sorry for my big technical words ! If you need name of place that did it just let me know BlueDragon and will find out . If remember it was in Edmond . Saying prayers for you .
Thank you. There's a Open MRI here in town. It is hooked to different hospital group than my doc's. Don't know but figure they try stay in-network facilities.
Know when I fell instead of 1/2 mile trip to ER they said nearest ER accepting orthopedic patients was about 35 miles away in different hospital group than local one. My docs still have trouble getting info from that hospital, orthopedic surgeon's group as well as their clinics since their computer system ain't open to my doc's computer system.
 

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Prayers that they find out exactly what is going on and are able to fix it! I feel your pain, I have had multiple back surgeries and the Doctors say that there is nothing else to do, which means pain meds...:(
 

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It sounds like you may have kyphosis or (a hunch back) and depending on he severity and your size and the type of MRI it could be extremely difficult to perform the procedure. We have done patients in the past like this but the images are not the best, too grainy to make proper diagnoses and we had to think out side of the box to place patients in real awkward and times painful positions, sometimes taking as long as 3 hours to perform a 30 minute exam with substandard results. Sorry you are experiencing all these obstacles.
 

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It sounds like you may have kyphosis or (a hunch back) and depending on he severity and your size and the type of MRI it could be extremely difficult to perform the procedure. We have done patients in the past like this but the images are not the best, too grainy to make proper diagnoses and we had to think out side of the box to place patients in real awkward and times painful positions, sometimes taking as long as 3 hours to perform a 30 minute exam with substandard results. Sorry you are experiencing all these obstacles.
Don't know if makes a difference but my old injury is Thoracic-region. The falling in Nov got a wedge compression fracture Lumbar region.
For years when go to like dentist my shoulders and head never touches headrest, even with couple of those little rolls they use to support head. Also, my left shoulder and ribcage is higher than right side, plus left shoulder turns more toward center(if that makes sense).
Mama says the curves look worst now.
Think they worked me over pretty good, too. Course had transfer from my powerchair to their chair before entering. So, 2 transfers get into MRI room along with techs trying different ways get my head down. Don't sound like much but that pretty much whipped me.
 

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It sounds like they did. Sorry to hear that.
 
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